Friday, 18 January 2008
GREAT NEWS!
Mood:
happy
I am so fortunate to work in the medical field and particularly the field that will be treating my daughter for sclerotherapy. I had the opportunity to discuss my daughter's situation with an Interventional Radiologist I work with (Dr. Gilbert). He went above and beyond and did some research on the Interventional Radiologist that Cassidy is scheduled with in Boston. Although Boston Children's Hospital is #1 in the world, the radiologist scheduled to give her treatments does not have the years experience that Dr. Gilbert feels is beneficial in treating her. He has recommended an Interventional Radiologist, LOCALLY, with many years experience in sclerotherapy for VM's. He spoke with him about Cassidy and we are already receiving VIP treatment!!! Cassidy is scheduled to be evaluated by him on Feb. 4th for possible treatments. He will decide at this time if he feels confident in treating her. Keep this in your prayers!!!
Wednesday, 16 January 2008
Thank You!
Mood:
bright
I am so thankful for all the prayers and support we have been receiving. Everyone has been so great to let us know that we are being prayed for. We have also received some care packages to help keep Cassidy content on our trips and during her recovery. What a wonderful idea-THANK YOU! Cassidy also loves to look at pictures of her friends and family-send us some!
Thursday, 3 January 2008
Boston Called
I heard from Boston today to confirm the February 13th date. We will meet with the interventional radiologist on this date to go over the treatment. The next day (Valentine's Day) Cassie will have her first sclero treatment. I don't think Valentine's Day will ever have the same meaning to us after this!
Wednesday, 26 December 2007
Last Days of Daycare
Mood:
blue
The girls had their last day of daycare on Dec. 21st. It was hard picking them up and saying goodbye to all the teachers. Both of their classes made some wonderful cards and a book for them to remember all their friends by. All their teachers left them some sweet notes. I know Cassie is going to miss all of them and ask to see them.
Sunday, 16 December 2007
Picture Requests!
I am going to make an album/scrapbook for Cassidy to take with her on her trips. I will be printing off the messages posted by everyone and putting them with their pictures. She will enjoy looking at this and having us read everyone's encouraging words as she travels and recovers! Please email us a picture or two of you, your kids, or family-so we can place it in her book. If you are creative and have the time, make your own page for us to put in her book!
Email pictures to blitzcraigg@netscape.com
Friday, 14 December 2007
Already A New Date-Feb 13th
I have already been contacted with a new date of February 13th. Even that is still considered tentative. They are waiting for the radiologists to provide their schedule to confirm dates. Plus they can bump us for an more urgent case-which is understandable.
Thursday, 13 December 2007
Treatment Date
It has been frustrating waiting for the scheduling department to call us. It has been over 5 weeks. We have been given a tentative date for beginning of January. I will keep everyone informed.
Tuesday, 11 December 2007
Daycare
Mood:
sad
- Today I had to inform daycare that the girls will no longer be attending. We can no longer afford to continue paying for daycare with Cassie's treatments, the trips, and a pay-cut. I was actually more emotional about it than I thought I would be. I tried to prepare Cassie with a little prelude that she will not be going there much longer. She started to cry. She will miss her friends and her teachers. It will be hard for her to not see them regularly anymore.
Monday, 10 December 2007
Waiting to hear from Boston
We are still waiting for the scheduling department for interventional radiology at Boston Children's Hospital to call. We put in for an appointment request on Nov 2nd and was informed it would take several weeks. I will be attempting to call them this week to see if I can get anywhere.
Tuesday, 1 January 2002
Back From Boston and Forging On
Mood:
a-ok
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